Agenda blue button
9:00 - 9:15 am Welcome and Personal Perspectives on Patient Engagement Blue Button Campaign Kickoff
Karen DeSalvo, MD, MPH, MSc, National Coordinator for Health Information Technology, Office of the National Coordinator, Health and Human Services (HHS)
9:15 - 9:30 am A Patient Perspective: How Technology Has Transformed My Health and Care
Emily Kramer-Golinkoff, MBE, Co-Founder, Emily’s Entourage
9:30 - 9:50 am Patient Engagement: The Foundation of Health Reform and Health Care Transformation
Sylvia Burwell, Secretary of HHS (invited)
9:50 - 10:00 am Expanding Patient Rights to Access Health Information and Protections
Jocelyn Samuels, JD, Director, Office for Civil Rights, HHS
10:00 - 10:05 am Bright Spot: Enabling Patients with Immunization Data
Rebecca Fish, MBA, Senior Policy Advisor, Office of the Assistant Secretary of Health, National Vaccine Program Office, HHS
10:05-10:15 am Fireside Chat: Delivering IT Solutions to Underserved Youth
  • Barbara Sorensen, Chief Executive Officer, Altruit
  • Alexis Barries, Youth Ambassador, HealthShack
10:15 – 10:30 am Break
10:30 - 11:10 am Closing the Health Care Digital Divide
Moderator: Ivor Horn, MD,MPH, Medical Director for the Center for Diversity and Health Equity, Seattle Children’s Hospital
  • Roderick Manifold, Executive Director, Central Virginia Health Services and Association of Clinicians for the Underserved
  • Julia Eddy, Quality Manager, Bread for the City
  • Paul Meyer, JD, BA, Co-Founder & President, Voxiva
  • Vanessa Mason, MPH, Senior Manager eHealth, ZeroDivide
11:10 - 11:50 pm Patient Engagement to Advance Patient Centered Outcomes Research
Moderator: Prashilla Dullabh, MD, Health Information Technology Program Area Director, National Opinion Research Center at the University of Chicago
  • Craig Lipset, MPH, Head of Clinical Innovation, Pfizer
  • Wendy Nielsen, Health Scientist Administrator, National Institute of Health
  • Jean Slutsky, PA, MSPH, Chief Engagement and Dissemination, Patient Centered Outcomes Research Institute
  • Sharon Terry, MA, Chief Executive Officer, Genetic Alliance
  • Keith Marsolo, PhD, Associate Professor, Cincinnati Children’s Hospital
11:50 - 12:50 pm Lunch
12:50 - 1:05 pm Congressional Perspective
Representative Michael Burgess, (R-TX)
1:05 - 1:15 pm Blue Button: Data is Fuel for Innovation
Ryan Panchadsaram, Deputy Chief Technology Officer of the United States
1:15 - 1:20 pm Demo: The Blue Button Connector 
Adam Dole, MBA, Former Blue Button Innovation Fellow
1:20 - 1:25 pm Bright Spot [Video]: Sickle Cell Anemia Patient Mediated Exchange Pilot at Children’s Medical Center in Dallas
1:25 - 2:05 pm Patient Mediated Exchange: Empowering Patients to Share Their Health Records
Moderator: Lee Stevens, Director of State Policy and Interoperability, Office of Policy, ONC
  • Laura McCrary, Ed.D, Executive Director, Kansas Health Information Network, Inc.
  • Tim Burdick, MD, MS, Chief Medical Informatics Officer, OCHIN
  • Mark Heaney, Chief Executive Officer and Founding Partner, Get Real Health
  • Gilbert Salinas, MPA, Fellow, Institute for Healthcare Improvement
2:05 - 2:15 pm Expanding Broadband Access to Rural Areas
Mignon Clyburn, Commissioner, Federal Communications Commission
2:15 - 2:55 pm Engaging Patients to Contribute to their Health Record and Integrating Patient Generated Health Data
Moderator: Claudia Williams, Senior Advisor, Health Innovation and Technology, White House Office of Science and Technology Policy
  • Michael Evans, Director Ambulatory Clinical Pharmacy Programs, Geisinger Health System
  • Janet Wright, Executive Director, Million Hearts
  • Arielle Carpenter, MPH, MBA, Director of Marketing, Withings
  • Nwando Eze, MD, MPH, Pediatrician, Neonatology Fellow at CHOC Childrens/Harbor UCLA and Mother of Two
2:55 – 3:00 pm Closing Thoughts
Karen DeSalvo

* * * * * * * *   Adjourn Webcast * * * * * * * *

3:00 – 5:00 pm Working Sessions (for in person attendees only):

Session #1 - Supporting Provider Readiness for Meaningful Use Stage 2 Patient and Family Engagement Measures (Breakout Room: East Room)

Session #2 - Understanding Consumer Access Models from Immunization Registries & Implementation (Breakout Room: Georgia Room)

Session #3 - Getting Hands on with the Digital Health Market: An Interactive Workshop Using Apps & Devices to Empower Consumers (Breakout Room: State Room)

Session #4 - Enabling Patient Access to Lab Results – CLIA Access Provisions and Patient Benefits (Breakout Room: Rhode Island)